May 20, 2021 by Judith Allen Shone
…dedicated to raising awareness of Myasthenia Gravis.
My intention on the site is to informally introduce What is Myasthenia Gravis?, a rare, chronic, autoimmune, neuromuscular disease that few people have heard about or know much about. In 2020, there were only an estimated 700,000 cases worldwide, with between 36,000 to 60,ooo estimated in Canada.
I share some personal confusions that I experienced during the six years it took for diagnosis, along with ten curious responses that I have heard over the years. The self-care I practice at nearly 80 is briefly outlined. Only a smidgeon of my sixty-five-year story, that began in 1956 when I first felt the muscle fatigue and weakness, is included. For now, site focus is helping others discover what might be helpful for them.
There are online resources listed, sites with various types of knowledge, some might include history, others research, all to ‘light up’ myasthenia gravis,
The easy navigation and simplicity of finding information on a website menu suits Myasthenia Gravis Insights well.
My wish is that readers will share with friends or family who they know have symptoms and hopefully, if they relate, will encourage them to talk to their family doctor. There is no way to know for sure if someone has MG without doctor investigation and evaluation.
Please bookmark this site. FORWARD this post URL link to someone whom you feel might benefit or might know someone who might benefit. We are raising awareness so others can gather information for discussion with their doctor to help sort out their symptoms.
Periodically, I will send a post, like this post, to remind folks of the disease. Or of any new pages added. Email notice about additions will be sent to those who sign up requesting to be included. Not more than once a month. Add your name here and you will be on the list for this purpose. Thank you.
I hope if you have myasthenia gravis you are living well. I hope that if you are searching for answers, you soon find yours.
Thank you for sharing Myasthenia Gravis so we can raise awareness of myasthenia gravis together and hopefully help others find a diagnosis, even if it is another disease.
Watch our right side bar to see most recent posts about many aspects of Myasthenia Gravis.
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others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.
THANK YOU. Judy Shone
Myasthenia Gravis Awareness Month (c) 2021 Judith Allen Shone