be part of the campaign to raise awareness of MG

Tell one person about MG

…dedicated to raising awareness of Myasthenia Gravis.

My wish is that, at least once in this month, each one of us will tell someone else about, introduce them to:

Myasthenia Gravis
a rare, chronic, autoimmune
neuromuscular disorder for which there is no cure

Today, learn one more thing…how to pronounce the words:
my-us-THEE-nee-uh GRAV-is, (GRAY-vis)
myasthenia gravis.

Become part of the ‘ripples of hope’

When you skip a pebble across still waters, you create ripples. The molecules begin to come alive. They begin to nudge one another, begin to affect one another, and pretty soon they are dancing together in waves, splashing across the waterways.

Awareness is like that. When we tell someone about myasthenia gravis, one person tells one person who tells one person and pretty soon many people have felt ‘the ripple’ through conversation. MG will no longer be a secret; people will become aware.

Tell one person, start a ripple. Your words will expand and an awakening will begin…those ripples will become waves of knowledge and an ‘aha’ moment for someone.

That’s what awareness can do!

I DID IT!

Let’s celebrate the advancing ripples together! Now, that you have learned the name, how to pronounce it and what it is, basically, and have told one person…please, go to the bottom of the page and write, ” I DID IT! I told one person.”

Easy, peezy

Learn something about myasthenia gravis.
See What is Myasthenia Gravis? to add to your understanding.
See Resources for MG if you yearn to learn for more.
Tell another person about myasthenia gravis.
After that, go to the bottom of the INSPIRATION page on this site and make some excitement….write:
“I DID IT” in the comments.
You rock! You are awesome!!
You can make a difference. Thank you!!!

Next post, June 7– “What is Myasthenia Gravis?” by Rebekah Dorr from Myasthenia Gravis Unmasked group on Facebook.

Watch our right side bar during June Awareness Month as throughout the month we add posts about many aspects of Myasthenia Gravis.

Thank you…you’ve made my heart sing!

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.

Art credit, iris garden: Nicolai Mitrushov on etsy
Iris = Wisdom and HOPE

Thirty days to raise awareness

…dedicated to raising awareness of Myasthenia Gravis.

My wish is that, at least once in this month, each one of us will tell someone else about Myasthenia Gravis,

… a rare, chronic, autoimmune
neuromuscular disorder for which there is no cure.

Become part of their hope

Let’s find time to reassure those seeking a diagnosis that we want to be part of their hope …our encouragement takes only as much time as to read this site, while we drink one coffee together!

Our effort to learn so we can introduce MG to someone who never has heard of it, like the ripples in a stream, will begin to reach those who are searching, and will make a huge difference in untold lives.

Watch our right side bar during June Awareness Month as throughout the month we add posts about many aspects of Myasthenia Gravis.

Easy, peezy

Learn something about myasthenia gravis.
See What is Myasthenia Gravis? to add to your understanding.
See Resources for MG if you yearn to learn for more.
Tell another person about myasthenia gravis.
After that, go to the bottom of the INSPIRATION page on this site and make some excitement….write:
“I DID IT” in the comments.
You rock! You are awesome!!
You can make a difference. Thank you!!!

Thank you…you’ve made my heart sing!

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.

Art credit, iris garden: Tatiana Mitrushova on etsy
Iris = Wisdom and HOPE

Children can read about MG

…dedicated to raising awareness of Myasthenia Gravis.

Over the years, a philosophy of life has emerged. One that I can live with, one that resonates with my core: “I’m going to be very happy, and then do everything I have ability and time to do after that.”

It did not happen overnight, but I now realize the importance of having that way of thinking for ME…giving me permission to let the stress of life evaporate.

Exciting to find this book!

I’m Still Me, My Life with MG, is written by Jenny Coffey and illustrated by Jenny Coffey and Caleb Sawyer. I don’t know the assigned reading level, but I believe all levels of readers will benefit, although in appearance, I first think of children.

When I read this wonderful book by author, (Smiley) Jenny Coffey, with her positive tone, it warmed my heart. The story fit not only into my current caregiver life and my recently resurfacing MG life, but also into the style of life I had consciously yearned for all my nearly-80 years.

I am so glad Jenny Coffey wrote (and illustrated) I’m Still Me: My Life with MG about her childhood “adventure” with MG. I find the perspective so positive, so filled with optimism, a tone that will transfer when reading to children, as well as when they read it to themselves.

Why am I qualified to praise this book?

I have had myasthenia gravis (MG) since I was twelve, (for sixty-seven years) and know how much this is going to help youngsters have a better understanding of classmates or others who appear unfamiliar in some way, in this case, with a disease causing muscle weakness. This book will possibly help some understand the feelings of one with MG so that person might not have to go through shame and hurt.

Both parents and children will be able to read it, or parents can read to children, either way, both will become more aware of a rare, debilitating, disease that is going undiagnosed for many…(I am not sure why.) June is Myasthenia Gravis Awareness Month and I encourage everyone to read this book, ask your library to add it, share it with schools.

Beginning in June, Myasthenia Gravis Awareness Month, and maybe every chance you have thereafter, I ask you to TELL ONE PERSON the name of the disease and how muscle weakness affects the body. I have heard it spoken both “my-us-THEE-nee-uh GRAV-is” and “my-us-THEE-nee-uh GRAY-vis.”

I see a publishing date of 2019 noted on Amazon…. go have a look at this adorably illustrated, beautifully characterized book with important messages for us all.

Thank you, Judy Shone

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