May 18, 2021 by Judith Allen Shone
“Knowing that we can be loved exactly as we are gives us all the best opportunity for growing into the healthiest of people.”
Mr. Rogers (Fred Rogers)
A brief list of related websites are listed below
under the umbrella of myasthenia gravis
The sites on this list are a beginning, and were selected from many available on the internet ‘under the umbrella’ of Myasthenia Gravis. Begin uncovering information here, and once started, ‘ask Alexa or Siri’- you will discover many more!
Website list focus:
- About MG
- About MG Self-care
- MG Newsletters & Other
- MG studies and reports
- Books, videos, podcasts still to be listed, but you can search.
- Research articles and conference reports still to be listed.
Myasthenia Gravis Insights does not endorse any specific MG sites on the internet. I, too, am always looking and learning, as well.
These sites appear to have information that can help us start gathering information about MG. Make a comment if you know a site that is especially appropriate for this page, especially for beginners to start learning about myasthenia gravis, all for information gathering – it can be added to the list. Always ‘reboot’ any page for most recent content.
This list does not intend to show preference. Instead, it is an alphabetical list presented in one place. Doctors may have preferred sites for you to study. Ask. And, if your doctor mentions one, visit it.
When we search, one thing leads to another… The trick is getting started, because once searching begins, there is much to learn…begin right here.
Once a preferred site is discovered, then the reader will likely be seeking information beyond the scope and purpose of this site.
Remember, we are located in Ontario, Canada, but that only means you might hear a Canadian/American accent! Myasthenia Gravis does not know country boundaries or languages. Perhaps the Google translation widget in the right column can help you if you are more comfortable with another language.
I wish you a successful journey.
Let’s get started together…
Myasthenia Gravis Society
of Canada
Myasthenia Gravis Society of Canada
EMAIL ADDRESS
Phone (905) 642 2545
Myasthenia Gravis Foundation of America
Myasthenia Gravis Foundation of America
EMAIL ADDRESS
Phone 1 (800) 541 5454
ABOUT MG
American Academy of Ophthalmology – (eyes) What is Myasthenia Gravis?
American Association for Pediatric and Strabismus – (eyes) – Myasthenia Gravis
Canadian Neuro-Ophthalmology Group – (eyes) Ocular myasthenia
Myasthenia Gravis – The American Journal of Medicine
Myasthenia Gravis Association of British Columbia
Myasthenia Gravis Association of Western Pennsylvania
Myasthenia Gravis – Better Health Network (AU) Printable fact sheet
Myasthenia Gravis – Brain Foundation
Myasthenia Gravis – Britannica
Myasthenia Gravis – Cedars Sinai
Myasthenia Gravis -Children’s Hospital Wisconsin
Myasthenia Gravis – Cleveland Clinic
Myasthenia Gravis Coalition of Canada
Myasthenia Gravis – Conquer Myasthenia Gravis
Myasthenia Gravis Facebook Group
Myasthenia Gravis Unmasked on Facebook
Myasthenia Gravis Foundation of California
Myasthenia Gravis Foundation of Michigan
Myasthenia Gravis – Harvard Health Publishing
Myasthenia Gravis – Healthline
Myasthenia Gravis – Johns Hopkins Medicine
Myasthenia Gravis – Kentucky Neuroscience Institute
Myasthenia Gravis – Mayo Clinic
Myasthenia Gravis – Medicine Net
Myasthenia Gravid – MedicinePlus
Myasthenia Gravis – Merck Manual Consumer
Myasthenia Gravis – Muscular Dystrophy
Myasthenia Gravis – My Real World
Myasthenia Gravis – National Center for Advancing Translational Sciences
Myasthenia Gravis – National Institute of Health (NIH) – Rare Diseases
Myasthenia Gravis – National Institute of Neurological Disorders and Stroke Online printable fact sheet; Download brochure
Myasthenia Gravis – National Library of Medicine
Myasthenic Association in NSW-Australia
Myasthenia Gravis – Pain Assist
for symptom descriptions
Myasthenia Gravis Society (in Alabama)
Myasthenia Gravis Society of Canada – Provincial Chapters
Myasthenia Gravis – Science Direct
Myasthenia Gravis – US Dept of Health and Human Services-Office on Womenn’s Health
Myasthenia Gravis – US Department of Health and Wellness
Myasthenia Gravis – Verywell health
Myasthenia Gravis – Yale Medicine Printable fact sheet
ABOUT MG SELF-CARE
Healthgrade – 7 Tips for Living with MG
Kentucky Neuroscience Institute – UK Healthcare -MG Self care
Knowmg.com – Living with Myasthenia Gravis
Myaware -the UK – Fighting Myasthenia together
Myasthenia Gravis.com – Living with Myasthenia Gravis
Myasthenia Gravis Foundation – Living with Myasthenia
Myasthenia Gravis Foundation of America – Care of the Patient with MG pdf
Myasthenia Gravis Foundation – Wellness Strategies
National Library of Medicine -Self-care actions
North American Neuro-Ophthalmology Society -(eyes) Myasthenia Gravis
Physiopedia – Myasthenia gravis – management
Preprints – Management of Myasthenia during the COVID-19 Pandemic
Rush University – Living with Myasthenia Gravis
US Department of Health and Wellness
MG NEWSLETTERS & OTHER
Canada
Myasthenia Gravis Society of Canada ‘VIEW‘ Online (CAN)
Current and back issues.
Myasthenia Gravis Association of British Columbia Newsletter Online (BC, CAN)
Some newsletters might have back issues online.
Other Locations
Myasthenia Gravis Foundation of America- Focus on MG, Spring 2021
MGNSW Newsletter (Australia)
Myasthenia Gravis News (BioNews Services, FL, USA)
Conquer MG Newsletter (IL, USA)
Myasthenia Gravis – Medical News Today (IL, USA
MG United – Living Life with MG
– apps to help
MGA Newsletter Online ( W. PA., USA)
FORUMS & COLUMNS
Strength in Weakness, by Michelle Gonzaba, a writer with myasthenia gravis on Myasthenia Gravis News.
Gonzaba also has discussion forums. You must become a member to participate.
MG STUDIES & REPORTS
The early history of myasthenia gravis (scientific articles)
News & Views in Management of MG (Reseach articles)
MG BOOKS, YouTube & VIDEOS, PODCASTS, CONFERENCE REPORTS, JOURNAL ARTICLES, RESEARCH ARTICLES
Eventually, I hope to be able to have time to add these links. There is much to do, but you can find what is online.
Some will be basic and some will be quite detailed – viewer’s choice. When ready, you may choose to pursue a fuller scope of what is available.
SUPPORT LINKS – SOCIAL, ONLINE, SOCIETIES, GOVERNMENTS
In addition to above sites, there are site links noted specifically for support of those with MG. See our page, Supporting One Another.
Beyond what is listed above
Beyond the incredible wealth of online resources, there are books and reference materials in local, city and university libraries, public and private, even in some hospitals, that might assist any search—call and find out what might be available. Adult and child level stories can give the writer’s perspective and experiences for us to learn from and evaluate against your own situation. Medical books sometimes are more detailed, but with important information, depending on what we are looking for.
We might find YouTube videos that are helpful, or podcasts. Different sites that talk about myasthenia may offer various helpful live presentations, zoom gatherings, or may schedule webinars, all of which can prove beneficial in research.
Never give up the quest! Google is not a doctor, but has much information for discovery.
It is possible that as I find more sites and more studies and more newsletters, and as stories begin to surface, more will be considered for addition here.
Suffice it to say, there is quite a bit to launch a research journey as it sits here now. Get a note pad or journal and sharp pencil.
Thank you for taking time to learn about myasthenia gravis.
Remember, share with one other person to raise awareness!
This is an awareness site only.
No diagnosis or treatment suggestions. Mainly, it is support and links to help those who are searching for ‘why they have weak muscles.’
Want to walk for, or donate to Myasthenia Gravis Society of Canada?
Visit Donate to MG Canada
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others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.
Resources for MG © 2021 Judith Allen Shone
Myasthenia Gravis Insights 