First hand accounts from those with myasthenia gravis.
“Everybody has a story. When we don’t take time to know someone’s story…we lose the chance to understand what they need…the first step to empathy.”
The iris was chosen for my myasthenia gravis story pages because it represents wisdom and hope… wisdom from those willing to share to encourage those who have hope, hope for guidance, hope for understanding and mostly, hope for a diagnosis.
By Judith Allen Shone, from
My Lifetime with Myasthenia Gravis
By the time I was in my first year of high school, I had already lived with ‘weak knees from an unidentified cause’ for over three years. I felt it was abnormal, yet doctors were disguising their bewilderment with cliché assessments and not searching for a cause. I was adjusting to my circumstances and their medical responses. (See Confusion I Experienced) …
By Rebekah Dorr, Facebook group, Myasthenia Gravis Unmasked
Our brain sends a signal to talk to our muscles through a chemical messenger called acetylcholine. This messenger travels down our nerves to a junction called the neuromuscular junction that sits between our nerve fibers and muscles. On specific muscles, sit acetylcholine receptors waiting to “catch” the chemical messenger so that the muscles can contract. Think of the messenger and receptor sites like keys in a key hole. They lock and turn and muscle contraction ignites. read more…
“Stories break through into the heart space.”
Ram Dass & Mirabai Bush
“Storytelling is the essential human activity. The harder the situation, the more essential storytelling is.”
~ Tim O’Brien, novelist
Do you have a story?
Could specific moments from your life with myasthenia gravis hold answers to someone else’s searching prayer?
Have you cared for someone with MG and have special encouragement to help those walking that same path?
We know we all learn new things every day!
When we share our stories, we all learn more from each other, giving us opportunities to encourage the ones challenged by myasthenia gravis.
In addition, our knowledge spills over and helps educate those in caring professions, as well as those who educate both doctors and caregivers.
If you wish to share, email your interest to me and let’s see how we can add ripples of hope into someone’s life.
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others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.
Stories (c) 2021 Judith Allen Shone
Art credits: Tatiana Mitrushova and Nikolai Mitrushov