Supporting One Another

Recently, on social media, there was a comment from someone who had just been diagnosed with myasthenia gravis. She was asking if there were others, who also had MG, especially near her same location. She had no idea where to look nor whom to ask. Like many of us, she was learning about the disease and would like to meet and speak to someone in her area.

I imagine this is a common feeling among those with MG, but having support could be reassuring!

Search for a support group by asking:

your local librarian
your community/city offices
your doctor or hospital administration
church members, or friends
group coordinators for groups listed here.
online groups where there is a forum format

Can you help?

These groups below represent a fraction of the groups available, but it gets you started thinking about what you want a group to be for you—

social?
informative?
local support?
events?
offer encouragement and reassurance.

What do you need?

With the idea of supporting one another, if you know of a group or are part of a group and would like to list it here, make a comment below with a link where you can be contacted. Include the following information. I would love to see THIS PAGE grow!

Any of this information, name and link minimum:

the name/location link to online site
group name
type of Group (Society, local, region, online, chat, etc.)
see below for examples of information for offering support to those in your area.

As a potential member of a group, always ask the preliminary questions to get answers that make you feel you are in the right place. Your doctor may also have social and emotional support recommendations. Ask!

CHECK IN YOUR AREA – YOUR STATE – YOUR PROVINCE – FOR GROUPS ONLINE OR LOCAL ORGANIZATIONS!

Check out these groups to begin.

“And always remember you are loved.”

Groups

Facebook Groups

MG FACEBBOOK GROUPS
(Private/join and Public)

Myasthenia Gravis, (privatejoin)”…the largest MG support group on Facebook, has over 13,000 members.”

Myasthenia Gravis Won’t Stop Me! (private/join) Hangout, talk support, encourage

Myasthenia Gravis Sisters (private/join)
Created just for women

Myasthenia Gravis Society of Canada
Canada’s MG patient advocacy group 60+ years

Myasthenia Advocacy for Young Adults (MAYA) (private/join). Ask questions, get answers

Parents with MG. (Private/join) Private group for parents diagnosed with MG

Myasthenia Gravis (Raremark)
Medical and Health

Myasthenia Gravis Unmasked
Sharing stories – Community

Myasthenia Gravis Society – Alabama
Medical and Health

Myasthenia Gravis Connecticut Nutmeg Chapter
Activities and Eventso

Other online groups

For online Support Group information from the
Myasthenia Gravis Foundation of America

Chat rooms from
Conquer Myasthenia Gravis

Finding Support for your MG Journey
Myasthenia Gravis

MG Support System
Myasthenia Gravis News

Canada / Provincial Groups

Myasthenia Gravis Society of Canada
247 Harold Avenue
Stouffville, ON, Canada, L4A 1C2
Phone: (905) 642 2545
Contact: Cap Cowan
Email:
Newsletter: Yes, online and via email

Myasthenia Gravis Association of B.C.
2805 Kingsway
Vancouver, BC, V5R 5H9
Phone: (604) 451 5511 ext. 1284
Contact: Brenda Kelsey
Online Support Group

Myasthenia Gravis Manitoba Inc.
339 Boyd Avenue
Winnipeg, MB, R2W 1P
Phone: (204) 444 7802
Contact: Diane S. Kowaliuk
Myasthenia Gravis Support Group: 204-582-5456

USA / State Groups

A through M

CALIFORNIA-How we help
Myasthenia Gravis Foundation of California

CONNECTICUT -Myasthenia Gravis Connecticut
Nutmeg Chapter

COLORADO-Myasthenia Gravis Information Source
The Myasthenia Gravis Association of Colorado

MASSACUSETTS – Myasthenia Gravis Foundation of America, Inc., Westborough, Massachusetts

MINNESOTA-Local Support Group
Myasthenia Gravis Minnesota

N through Z

NEBRASKA & IOWA–Heartland Myasthenia Gravis Association for Nebraska and Iowa – Support and Service

NEW YORK – Myasthenia Gravis Alliance MGF of Greater NY

OHIO-Ohio State’s Myasthenia Gravis Clinic
Ohio Chapter Myasthenia Gravis

PENNSYLVANIA-Social and Emotional Support
Myasthenia Gravis Western Pennsylvania

TEXAS-Alamo Support Group of South Texas
Myasthenia Gravis South Texas

WASHINGTON–Myasthenia Gravis
Friends & Support Group, WA, Inc.

Ask your group if they would like to have their link put online for others to see?
Send it through the site email, here. We will add if it applies. Thank you.

And, “…may you always remember….you are loved.”
The Harper’s Blessing is a beautiful song sung by Cathy Britell, composer, on autoharp, and William Limbach on guitar.