…dedicated to raising awareness of Myasthenia Gravis.
Over the years, a philosophy of life has emerged. One that I can live with, one that resonates with my core: “I’m going to be very happy, and then do everything I have ability and time to do after that.”
It did not happen overnight, but I now realize the importance of having that way of thinking for ME…giving me permission to let the stress of life evaporate.
Exciting to find this book!
I’m Still Me, My Life with MG, is written by Jenny Coffey and illustrated by Jenny Coffey and Caleb Sawyer. I don’t know the assigned reading level, but I believe all levels of readers will benefit, although in appearance, I first think of children.
When I read this wonderful book by author, (Smiley) Jenny Coffey, with her positive tone, it warmed my heart. The story fit not only into my current caregiver life and my recently resurfacing MG life, but also into the style of life I had consciously yearned for all my nearly-80 years.
I am so glad Jenny Coffey wrote (and illustrated) I’m Still Me: My Life with MG about her childhood “adventure” with MG. I find the perspective so positive, so filled with optimism, a tone that will transfer when reading to children, as well as when they read it to themselves.
Why am I qualified to praise this book?
I have had myasthenia gravis (MG) since I was twelve, (for sixty-seven years) and know how much this is going to help youngsters have a better understanding of classmates or others who appear unfamiliar in some way, in this case, with a disease causing muscle weakness. This book will possibly help some understand the feelings of one with MG so that person might not have to go through shame and hurt.
Both parents and children will be able to read it, or parents can read to children, either way, both will become more aware of a rare, debilitating, disease that is going undiagnosed for many…(I am not sure why.) June is Myasthenia Gravis Awareness Month and I encourage everyone to read this book, ask your library to add it, share it with schools.
Beginning in June, Myasthenia Gravis Awareness Month, and maybe every chance you have thereafter, I ask you to TELL ONE PERSON the name of the disease and how muscle weakness affects the body. I have heard it spoken both “my-us-THEE-nee-uh GRAV-is” and “my-us-THEE-nee-uh GRAY-vis.”
I see a publishing date of 2019 noted on Amazon…. go have a look at this adorably illustrated, beautifully characterized book with important messages for us all.
Thank you, Judy Shone
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Children can understand MG (c) 2021 Judith Allen Shone